Evaluating the feasibility of a co-produced, bespoke dementia education programme for formal caregivers of individuals with intellectual disability
Acton, Daniel Jaydeokar, Sujeet Taylor, Ruth Jones, Steven
Acton, Daniel
Jaydeokar, Sujeet
Taylor, Ruth
Jones, Steven
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2026
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Abstract
Dementia education programmes for formal caregivers of people with intellectual disability are limited. This study was not designed or powered to evaluate effectiveness, but to assess the feasibility, acceptability, and appropriateness of outcome measures for a co-produced dementia education programme within intellectual disability services. A mixed methods, quasi experimental feasibility study was conducted with 40 formal caregivers recruited from supported living and residential providers across four NHS Trusts in the Northwest of England. The programme comprised interactive modules, case studies, group discussion, and practical tools to support the management of dementia related behaviours and promote person-centred care. Feasibility outcomes included recruitment, retention, acceptability, and completion of outcome measures. The dementia education programme was found to be feasible and acceptable with minor modifications. Recruitment and retention were good, with 100% completion of follow-up outcome measures, supporting the suitability of the programme and study procedures for future research.
Citation
Acton, D., Jaydeokar, S., Taylor, R., & Jones, S. (2026 - forthcoming). Evaluating the feasibility of a co-produced, bespoke dementia education programme for formal caregivers of individuals with intellectual disability. Journal of Intellectual Disabilities, vol(issue), pages. https://doi.org/10.1177/17446295261440431
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SAGE Publications
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Journal of Intellectual Disabilities
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This document is the Accepted Manuscript version of a published work that appeared in final form in Journal of Intellectual Disabilities. To access the final edited and published work see http://doi.org/10.1177/17446295261440431.
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1744-6295
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1744-6309
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Funder: National Institute for Health Research (NIHR)