• Developing new frameworks to value genomic information: accounting for complexity

      Eden, Martin; orcid: 0000-0002-1542-2527; email: martin.eden@manchester.ac.uk (Future Medicine Ltd, 2021-05-13)
    • Developing new frameworks to value genomic information: accounting for complexity

      Eden, Martin; orcid: 0000-0002-1542-2527; email: martin.eden@manchester.ac.uk (Future Medicine Ltd, 2021-05-13)
    • Patient engagement in melanoma research: from bench to bedside

      Tivey, Ann; Huddar, Prerana; Shotton, Rohan; Cheese, Imogen; Daniels, Susanna; Lorigan, Paul; orcid: 0000-0002-8875-2164; J Lee, Rebecca; orcid: 0000-0003-2540-2009; email: Rebecca.lee-3@manchester.ac.uk (Future Medicine Ltd, 2021-07-02)
      Advances in research have transformed the management of melanoma in the past decade. In parallel, patient advocacy has gained traction, and funders are increasingly prioritizing patient and public involvement. Here we discuss the ways in which patients and the public can be engaged in different stages of the research process, from developing, prioritizing and refining the research question to preclinical studies and clinical trials, then finally to ongoing research in the clinic. We discuss the challenges and opportunities that exist at each stage in order to ensure that a representative population of patients and the public contribute to melanoma research both now and in the future.
    • Patient engagement in melanoma research: from bench to bedside

      Tivey, Ann; Huddar, Prerana; Shotton, Rohan; Cheese, Imogen; Daniels, Susanna; Lorigan, Paul; orcid: 0000-0002-8875-2164; J Lee, Rebecca; orcid: 0000-0003-2540-2009; email: Rebecca.lee-3@manchester.ac.uk (Future Medicine Ltd, 2021-07-02)
      Advances in research have transformed the management of melanoma in the past decade. In parallel, patient advocacy has gained traction, and funders are increasingly prioritizing patient and public involvement. Here we discuss the ways in which patients and the public can be engaged in different stages of the research process, from developing, prioritizing and refining the research question to preclinical studies and clinical trials, then finally to ongoing research in the clinic. We discuss the challenges and opportunities that exist at each stage in order to ensure that a representative population of patients and the public contribute to melanoma research both now and in the future.