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dc.contributor.authorWillis, Derek
dc.contributor.authorWillis, Tracey
dc.contributor.authorBassie, Claire
dc.contributor.authorEglon, Gail
dc.contributor.authorAshley, Emma-Jayne
dc.contributor.authorTurner, Chris
dc.date.accessioned2024-02-05T02:25:39Z
dc.date.available2024-02-05T02:25:39Z
dc.date.issued2024-01-22
dc.identifierpubmed: 38253488
dc.identifierdoi: 10.1136/spcare-2023-004748
dc.identifierpii: spcare-2023-004748
dc.identifier.citationWillis, D., Willis, T., Bassie, C., Eglon, G., Ashley, E-J., & Turner, C. (2024). Myotonic dystrophy type 1: palliative care guidelines. BMJ Supportive & Palliative Care, vol(issue), pages. https://doi.org/
dc.identifier.issn2045-435X
dc.identifier.doi10.1136/spcare-2023-004748
dc.identifier.urihttp://hdl.handle.net/10034/628472
dc.descriptionThis article is not available on ChesterRep
dc.description.abstractPalliative care for adults with neuromuscular conditions is an emerging field. Previous guidelines regarding myotonic dystrophy and palliative care have only mentioned end-of-life care and little else. The following guidelines have been written using national experts as a description of best practice as part of the Dystrophia Myotonica National Care Guidelines Consortium. [Abstract copyright: © Author(s) (or their employer(s)) 2024. No commercial re-use. See rights and permissions. Published by BMJ.]
dc.languageeng
dc.publisherBMJ Publishing Group
dc.relation.urlhttps://spcare.bmj.com/content/early/2024/01/22/spcare-2023-004748
dc.sourceeissn: 2045-4368
dc.subjectNeurological conditions
dc.subjectAdvance Care Planning
dc.titleMyotonic dystrophy type 1: palliative care guidelines
dc.typeArticle
dc.identifier.eissn2045-4368
dc.contributor.departmentUniversity of Chester; Robert Jones and Agnes Hunt Orthopaedic Hospital NHS Foundation Trust; Newcastle Upon Tyne Hospitals NHS Foundation Trust; Cure Myotonic Dystrophy UK; University College London Hospitals NHS Foundation Trust
dc.identifier.journalBMJ Supportive & Palliative Care
dc.date.updated2024-02-05T02:25:39Z
dc.date.accepted2023-12-15


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