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dc.contributor.authorQualter, Pamela; orcid: 0000-0001-6114-3820; email: pamela.qualter@manchester.ac.uk
dc.contributor.authorRouncefield-Swales, Alison
dc.contributor.authorBray, Lucy
dc.contributor.authorBlake, Lucy
dc.contributor.authorAllen, Steven
dc.contributor.authorProbert, Chris
dc.contributor.authorCrook, Kay
dc.contributor.authorCarter, Bernie; orcid: 0000-0001-5226-9878; email: bernie.carter@edgehill.ac.uk
dc.date.accessioned2021-09-30T15:46:06Z
dc.date.available2021-09-30T15:46:06Z
dc.date.issued2020-09-30
dc.identifierhttps://chesterrep.openrepository.com/bitstream/handle/10034/625993/11136_2020_Article_2653_nlm.xml?sequence=2
dc.identifierhttps://chesterrep.openrepository.com/bitstream/handle/10034/625993/11136_2020_Article_2653.pdf?sequence=3
dc.identifier.citationQuality of Life Research, volume 30, issue 2, page 497-506
dc.identifier.urihttp://hdl.handle.net/10034/625993
dc.descriptionFrom Springer Nature via Jisc Publications Router
dc.descriptionHistory: registration 2020-09-24, accepted 2020-09-24, online 2020-09-30, pub-electronic 2020-09-30, pub-print 2021-02
dc.descriptionPublication status: Published
dc.descriptionFunder: Crohn's and Colitis UK; doi: http://dx.doi.org/10.13039/501100003522; Grant(s): SP2017-2
dc.descriptionFunder: University of Manchester
dc.description.abstractAbstract: Purpose: Adolescents and young adults (AYA) with Inflammatory Bowel Disease (IBD) report higher depressive symptoms and anxiety compared to healthy controls, with disease severity and abdominal pain being important factors. In the current study, building on what young people had told us in our previous work, we examined whether embarrassment of the condition, social self-efficacy, and friendship quality mediated the relationship between abdominal pain and disease severity, and mental health/well-being. We also included loneliness as a component of well-being. Methods: Data on depression, anxiety, loneliness, friendship quality, social self-efficacy, and disease embarrassment were collected from 130 AYA with IBD ages 14–25 years; data on disease severity and abdominal pain were taken from their medical records. Structural Equation Modeling (SEM) was used to test the relationships between the variables. Results: Using SEM, we established that higher IBD disease activity negatively impacted how AYA felt about their friendships and how embarrassed they were about their condition; embarrassment then influenced reports of mental health, including loneliness. Abdominal pain, disease onset, and social self-efficacy directly predicted internalising problems. Conclusion: In this sample of 14–25-year-old patients with IBD, specifics about the disease (severity and pain) predicted poorer mental health, suggesting discussion of mental health should be part of the clinical dialogue between patient and consultant. In addition, embarrassment about their condition increased depression, anxiety, and loneliness, mediating the relationship between disease severity and well-being. Thus, it is important to consider how perceived stigma affects those with chronic illness, and those issues should be explored in clinic.
dc.languageen
dc.publisherSpringer International Publishing
dc.rightsLicence for this article: http://creativecommons.org/licenses/by/4.0/
dc.sourcepissn: 0962-9343
dc.sourceeissn: 1573-2649
dc.subjectArticle
dc.subjectIBD
dc.subjectCrohn’s
dc.subjectUlcerative colitis
dc.subjectMental health
dc.subjectLoneliness
dc.subjectEmbarrassment
dc.titleDepression, anxiety, and loneliness among adolescents and young adults with IBD in the UK: the role of disease severity, age of onset, and embarrassment of the condition
dc.typearticle
dc.date.updated2021-09-30T15:46:06Z
dc.date.accepted2020-09-24


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