Keto-on-the-Clock: A Survey of Dietetic Care Contact Time Taken to Provide Ketogenic Diets for Drug-Resistant Epilepsy in the UK
Authors
Lambert, BridgetLightfoot, Kathryn
Meskell, Rachel
Whiteley, Victoria
Martin-McGill, Kirsty J.
Schoeler, Natasha
Affiliation
Vitaflo (International) Ltd; Leeds Children’s Hospital; Royal Manchester Children’s Hospital; University of Salford; University of Chester; UCL Great Ormond Street Institute of Child HealthPublication Date
2021-07-21
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Medical ketogenic diets (KDs) are effective yet resource-intensive treatment options for drug-resistant epilepsy (DRE). We investigated dietetic care contact time, as no recent data exist. An online survey was circulated to ketogenic dietitians in the UK and Ireland. Data were collected considering feeding route, KD variant and type of ketogenic enteral feed (KEF), and the estimated number of hours spent on patient-related activities during the patient journey. Fifteen dietitians representing nine KD centres responded. Of 335 patients, 267 (80%) were 18 years old or under. Dietitians spent a median of 162 h (IQR 54) of care contact time per patient of which a median of 48% (IQR 6) was direct contact. Most time was required for the classical KD taken orally (median 193 h; IQR 213) as a combined tube and oral intake (median 211 h; IQR 172) or a blended food KEF (median 189 h; IQR 148). Care contact time per month was higher for all KDs during the three-month initial trial compared to the two-year follow-up stage. Patients and caregivers with characteristics such as learning or language difficulties were identified as taking longer. Twelve out of fifteen (80%) respondents managed patients following the KD for more than two years, requiring an estimated median contact care time of 2 h (IQR 2) per patient per month. Ten out of fifteen (67%) reported insufficient official hours for dietetic activities. Our small survey gives insight into estimated dietetic care contact time, with potential application for KD provision and service deliveryCitation
Lambert, B., Lightfoot, K., Meskell, R., Whiteley, V. J., Martin-McGill, K. J., & Schoeler, N. E. (2021). Keto-on-the-Clock: A survey of dietetic care contact time taken to provide Ketogenic diets for drug-resistant epilepsy in the UK. Nutrients, 13(8), 2484. https://doi.org/10.3390/nu13082484Publisher
MDPIJournal
NutrientsAdditional Links
https://www.mdpi.com/2072-6643/13/8/2484Type
articleEISSN
2072-6643ae974a485f413a2113503eed53cd6c53
10.3390/nu13082484
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