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dc.contributor.authorBeatty, Lisa
dc.contributor.authorKoczwara, Bogda
dc.contributor.authorButow, Phyllis
dc.contributor.authorTurner, Jane
dc.contributor.authorGirgis, Afaf
dc.contributor.authorSchofield, Penelope
dc.contributor.authorHulbert-Williams, Nicholas J
dc.contributor.authorKaambwa, Billingsley
dc.contributor.authorKemp, Emma
dc.date.accessioned2021-03-24T14:18:14Z
dc.date.available2021-03-24T14:18:14Z
dc.identifierhttps://chesterrep.openrepository.com/bitstream/handle/10034/624395/FMW-A%20development%20%26%20usability_for%20ChesterRep.docx.pdf?sequence=1
dc.identifier.citationBeatty, L., Koczwara, B., Butow, P., Turner, J., Girgis, A., Schofield, P., Hulbert-Williams, N. J., Kaambwa, B., & Kemp, E. (2021). Development and usability testing of a web-based psychosocial intervention for women living with metastatic breast cancer: Finding My Way-Advanced. Journal of cancer survivorship : research and practice, 10.1007/s11764-021-01019-5. Advance online publication. https://doi.org/10.1007/s11764-021-01019-5en_US
dc.identifier.urihttp://hdl.handle.net/10034/624395
dc.descriptionThe final publication is available at Springer via http://dx.doi.org/10.1007/s11764-021-01019-5en_US
dc.description.abstractPurpose: Women living with metastatic breast cancer (MBC) face significant distress and unmet needs, yet few resources have been developed for this population. The current study aimed to develop and evaluate the usability of Finding My Way-Advanced (FMW-A), a web-based self-guided psychosocial program for women with MBC. Methods: FMW-A was co-designed through (a) adapting an efficacious online program for people with curatively treated cancer, and (b) receiving iterative rounds of input and feedback from a multidisciplinary co-design team including consumers, clinicians and academics. A think-aloud protocol was then implemented to test the usability of the resulting 6-module prototype, with women living with MBC accessing up to three modules with an interviewer sitting along-side. Participants were recruited until saturation of themes occurred. Data were analysed thematically. Results: Participants (n=8) were, on average, 65.3 years old, mostly partnered (n=5), retired (n=6), post-secondary school educated (n=6), with non-dependent children (n=7). Feedback fell into 6 themes. Positive feedback about FMW-A summarised the supportive and informative nature of the programme, supplemented by comments about broadly relatable content. However, one size clearly did not fit all: within themes, diverging experiences emerged regarding navigability, worksheets and layout. Participants noted that having/making time for the intervention would be important to program engagement. Conclusions: Usability testing indicated participants found content helpful and relatable, and identified significant pragmatic improvements to be made prior to further testing. Implications for cancer survivors: The development of FMW-A represents an important step in providing acceptable resources to support women living with MBC.en_US
dc.publisherSpringeren_US
dc.relation.urlhttps://pubmed.ncbi.nlm.nih.gov/33723741/en_US
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 International*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en_US
dc.titleDevelopment and usability testing of a web-based psychosocial intervention for women living with metastatic breast cancer: Finding My Way-Advanceden_US
dc.typeArticleen_US
dc.identifier.eissn1932-2267en_US
dc.contributor.departmentFlinders University; Flinders Medical Centre; Sydney University; University of Queensland; University of New South Wales; Swinburne University of Technology; University of Chesteren_US
dc.identifier.journalJournal of Cancer Survivorshipen_US
or.grant.openaccessYesen_US
rioxxterms.funderCancer Council South Australiaen_US
rioxxterms.identifier.projectN/Aen_US
rioxxterms.versionAMen_US
rioxxterms.versionofrecord10.1007/s11764-021-01019-5en_US
rioxxterms.licenseref.startdate2022-03-15
dcterms.dateAccepted2021-03-09
rioxxterms.publicationdate2021-03-15
dc.date.deposited2021-03-24en_US
dc.indentifier.issn1932-2259en_US


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