Development and usability testing of a web-based psychosocial intervention for women living with metastatic breast cancer: Finding My Way-Advanced
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Authors
Beatty, LisaKoczwara, Bogda
Butow, Phyllis N.
Turner, Jane
Girgis, Afaf
Schofield, Penelope
Hulbert-Williams, Nicholas J.
Kaambwa, Billingsley
Kemp, Emma
Affiliation
Flinders University; Flinders Medical Centre; Sydney University; University of Queensland; University of New South Wales; Swinburne University of Technology; University of ChesterPublication Date
2021-03-15
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Purpose: Women living with metastatic breast cancer (MBC) face significant distress and unmet needs, yet few resources have been developed for this population. The current study aimed to develop and evaluate the usability of Finding My Way-Advanced (FMW-A), a web-based self-guided psychosocial program for women with MBC. Methods: FMW-A was co-designed through (a) adapting an efficacious online program for people with curatively treated cancer, and (b) receiving iterative rounds of input and feedback from a multidisciplinary co-design team including consumers, clinicians and academics. A think-aloud protocol was then implemented to test the usability of the resulting 6-module prototype, with women living with MBC accessing up to three modules with an interviewer sitting along-side. Participants were recruited until saturation of themes occurred. Data were analysed thematically. Results: Participants (n=8) were, on average, 65.3 years old, mostly partnered (n=5), retired (n=6), post-secondary school educated (n=6), with non-dependent children (n=7). Feedback fell into 6 themes. Positive feedback about FMW-A summarised the supportive and informative nature of the programme, supplemented by comments about broadly relatable content. However, one size clearly did not fit all: within themes, diverging experiences emerged regarding navigability, worksheets and layout. Participants noted that having/making time for the intervention would be important to program engagement. Conclusions: Usability testing indicated participants found content helpful and relatable, and identified significant pragmatic improvements to be made prior to further testing. Implications for cancer survivors: The development of FMW-A represents an important step in providing acceptable resources to support women living with MBC.Citation
Beatty, L., Koczwara, B., Butow, P., Turner, J., Girgis, A., Schofield, P., Hulbert-Williams, N. J., Kaambwa, B., & Kemp, E. (2021). Development and usability testing of a web-based psychosocial intervention for women living with metastatic breast cancer: Finding My Way-Advanced. Journal of Cancer Survivorship, 15(3), 403–409. https://doi.org/10.1007/s11764-021-01019-5Publisher
SpringerJournal
Journal of Cancer SurvivorshipAdditional Links
https://pubmed.ncbi.nlm.nih.gov/33723741/https://link.springer.com/article/10.1007%2Fs11764-021-01019-5
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ArticleDescription
The final publication is available at Springer via http://dx.doi.org/10.1007/s11764-021-01019-5ISSN
1932-2259EISSN
1932-2267ae974a485f413a2113503eed53cd6c53
10.1007/s11764-021-01019-5
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