The efficacy of using Appropriate Paper-based Technology postural support devices in Kenyan children with Cerebral Palsy
AffiliationUniversity Centre Shrewsbury - University of Chester
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AbstractPurpose: Appropriate paper-based technology (APT) is used to provide postural support for children with cerebral palsy (CP) in low-resourced settings. This pilot study aimed to evaluate the impact of APT on the children’s and families’ lives. Materials and methods: A convenience sample of children with CP and their families participated. Inclusion was based on the Gross Motor Function Classification System levels IV and V. APT seating or standing frames were provided for six months. A mixed methods impact of APT devices on the children and families included the Family Impact Assistive Technology Scale for Adaptive Seating (FIATS-AS); the Child Engagement in Daily Life (CEDL) questionnaire; and a qualitative assessment from diary/log and semi-structured interviews. Results: Ten children (median 3 years, range 9 months - 7 years). Baseline to follow-up median (IQR) FIATS-AS were: 22.7 (9.3) and 30.3 (10.2), respectively (p = 0.002). Similarly mean (SD) CEDL scores for “frequency” changed from 30.5 (13.2) to 42.08 (5.96) (p=0.021) and children’s enjoyment scores from 2.23 (0.93) to 2.91 (0.79) (p = 0.019). CEDL questionnaire for self-care was not discriminatory; seven families scored zero at both baseline and 6 months. Qualitative interviews revealed three key findings; that APT improved functional ability, involvement/interaction in daily-life situations, and a reduced family burden of care. Conclusion: APT devices used in Kenyan children with non-ambulant CP had a meaningful positive effect on both the children’s and their families’ lives.
CitationBarton, C., Buckley, J. P., Samia, P., Williams, F., Taylor, S. & Lindoewood, R. (2020). The efficacy of using Appropriate Paper-based Technology postural support devices in Kenyan children with Cerebral Palsy. Disability and Rehabilitation: Assistive Technology.
PublisherTaylor and Francis
DescriptionThis is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation: Assistive Technology on forthcoming, available online: doi to be supplied.
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