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'Reflections on a birthday': An auto-ethnographic account of caring for a child with a learning disabilityThis commentary offers some of the author’s experiences of parenting a child with a severe learning disability and complex and challenging behaviours. Drawing on principles of auto-ethnography and critical reflection, the author considers issues of transition from children’s to adult social care services and the potential for support from a new piece of UK Legislation, the Care Act, 2014.
Understanding of the Care Act 2014 among carers of adults with learning disabilitiesThe Care Act (2014) gave new rights to carers for assessment and aimed to provide a structure for a more personalised approach to care and support (DoH, 2014). The UK population is an aging one and research indicates that people with learning disabilities are part of this longevity (Emerson and Hatton, 2008; Foster and Boxall, 2015; Walker and Ward, 2013) with the majority of people with learning disabilities remaining in family care for many years (Cairns, et al. 2013; Gant, 2010). Thus carers are frequently providers of care for their relative with a learning disability and take on many levels of responsibility, often lasting for decades. This paper describes a research study involving 9 carers of adults with learning disabilities to establish their views on this piece of legislation, its likely significance to them and their relatives, and provides a forum for discussion and debate in terms of possible implications for practice.