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dc.contributor.authorHulbert-Williams, Nicholas
dc.contributor.authorNorwood, Sabrina
dc.contributor.authorGillanders, David
dc.contributor.authorFinucane, Anne
dc.contributor.authorSpiller, Juliet
dc.contributor.authorStrachan, Jenny
dc.contributor.authorMillington, Sue
dc.contributor.authorSwash, Brooke
dc.date.accessioned2019-08-12T14:36:50Z
dc.date.available2019-08-12T14:36:50Z
dc.date.issued2019
dc.identifier.citationHulbert-Williams, N. J., Norwood, S., Gillanders, D., Finucane, A., Spiller, J., Strachan, J., Millington, S. & Swash, B. (2019). Brief Engagement and Acceptance Coaching for Community and Hospice Settings (the BEACHeS Study): Protocol for the development and pilot testing of an evidence-based psychological intervention to enhance wellbeing and aid transition into palliative care. Pilot & Feasibility Studies.en_US
dc.identifier.urihttp://hdl.handle.net/10034/622494
dc.description.abstractBackground: Cancer affects millions of individuals globally, with a mortality rate of over eight million people annually. Although palliative care is often provided outside of specialist services, many people require, at some point in their illness journey, support from specialist palliative care services, for example, those provided in hospice settings. This transition can be a time of uncertainty and fear and there is a need for effective interventions to meet the psychological and supportive care needs of people with cancer that cannot be cured. While Acceptance and Commitment Therapy (ACT) has been shown to be effective across diverse health problems, robust evidence for its effectiveness in palliative cancer populations is not extensive. Method: This mixed-methods study uses a single-case experimental design with embedded qualitative interviews to pilot test a novel intervention for this patient group. Between 14 and 20 patients will be recruited from two hospices in England and Scotland. Participants will receive five face-to-face manualised sessions with a psychological therapist. Sessions are structured around teaching core ACT skills (Openness, Awareness and Engagement) as a way to deal effectively with challenges of transition into specialist palliative care services. Outcome measures include: cancer-specific quality of life (primary outcome) and distress (secondary outcome), which are assessed alongside measures of psychological flexibility. Daily diary outcome assessments will be taken for key measures, alongside more detailed weekly self-report, through baseline, intervention and one-month follow-up phases. After follow-up, participants will be invited to take part in a qualitative interview to understand their experience of taking part, and acceptability and perceived effectiveness of the intervention and its components. Discussion: This study is the first investigation of using ACT with terminally ill patients at the beginning of their transition into palliative treatment. Using in-depth single-case approaches, we will refine and manualise intervention content by the close of the study for use in follow-up research trials. Our long-term goal is then to test the intervention as delivered by non-psychologist specialist palliative care practitioners thus broadening the potential relevance of the approach.en_US
dc.language.isoenen_US
dc.publisherBMCen_US
dc.relation.urlhttps://pilotfeasibilitystudies.biomedcentral.com/en_US
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 International*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en_US
dc.subjectPalliative careen_US
dc.subjectCanceren_US
dc.subjectsingle-caseen_US
dc.subjectAcceptance and Commitment Therapyen_US
dc.titleBrief Engagement and Acceptance Coaching for Community and Hospice Settings (the BEACHeS Study): Protocol for the development and pilot testing of an evidence-based psychological intervention to enhance wellbeing and aid transition into palliative careen_US
dc.typeArticleen_US
dc.identifier.eissn2055-5784
dc.contributor.departmentUniversity of Chester; University of Edinburgh; Marie Curie Hospice Edinburghen_US
dc.identifier.journalPilot & Feasibility Studiesen_US
dc.date.accepted2019-08-15
or.grant.openaccessYesen_US
rioxxterms.funderMacmillan Cancer Support (Grant Number 400914).en_US
rioxxterms.identifier.projectMacmillan Cancer Support (Grant Number 400914).en_US
rioxxterms.versionAMen_US
rioxxterms.licenseref.startdate2019-12-31
refterms.dateFCD2019-08-01T16:38:49Z
refterms.versionFCDAM


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