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dc.contributor.authorButterworth, Sondra*
dc.contributor.authorMitchell, Andrew E. P.*
dc.contributor.authorMason-Whitehead, Elizabeth*
dc.contributor.authorMartin, Kate*
dc.date.accessioned2019-05-13T13:23:17Z
dc.date.available2019-05-13T13:23:17Z
dc.date.issued2019-05-01
dc.identifier.citationButterworth, S., Mitchell, A. E. P., Mason-Whitehead, E., Martin, K. (2019). Epidermolysis bullosa: how social support affects quality of life. Nursing Times, 115(5), 48-51
dc.identifier.issn0954-7762
dc.identifier.urihttp://hdl.handle.net/10034/622253
dc.description.abstractMeasuring quality of life has become an increasingly important method of evaluating the effect of health and social care interventions. The rare genetic condition epidermolysis bullosa is known to have a deep social impact on people’s quality of life, but most research into the condition is focused on its biomedical aspects and attempts to find a cure. A literature review has explored the relationship between social support and quality of life in people with epidermolysis bullosa. It concludes that, while more research is needed, social support does have a positive impact on quality of life and that professionals should adopt a bio-psychosocial approach to management.en_US
dc.language.isoenen_US
dc.publisherEMAPen_US
dc.relation.urlhttps://www.nursingtimes.net/clinical-archive/dermatology/epidermolysis-bullosa-how-social-support-affects-quality-of-life/7028530.articleen_US
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en_US
dc.subjectEpidermolysis bullosa (EB)en_US
dc.subjectQuality of lifeen_US
dc.subjectHealth-related quality of lifeen_US
dc.subjectLived experienceen_US
dc.subjectBio-psychosocial modelen_US
dc.titleEpidermolysis bullosa: how social support affects quality of lifeen_US
dc.typeArticleen_US
dc.contributor.departmentUniversity of Chester
dc.identifier.journalNursing Times
dc.date.accepted2018-11-22
or.grant.openaccessYesen_US
rioxxterms.funderUnfundeden_US
rioxxterms.identifier.projectUnfundeden_US
rioxxterms.versionAMen_US
rioxxterms.licenseref.startdate2219-05-01


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