Epidermolysis bullosa: how social support affects quality of life
AffiliationUniversity of Chester
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AbstractMeasuring quality of life has become an increasingly important method of evaluating the effect of health and social care interventions. The rare genetic condition epidermolysis bullosa is known to have a deep social impact on people’s quality of life, but most research into the condition is focused on its biomedical aspects and attempts to find a cure. A literature review has explored the relationship between social support and quality of life in people with epidermolysis bullosa. It concludes that, while more research is needed, social support does have a positive impact on quality of life and that professionals should adopt a bio-psychosocial approach to management.
CitationButterworth, S., Mitchell, A. E. P., Mason-Whitehead, E., Martin, K. (2019). Epidermolysis bullosa: how social support affects quality of life. Nursing Times, 115(5), 48-51
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