‘Haematological cancers, they’re a funny bunch’: A qualitative study of Non-Hodgkin lymphoma patient experiences of unmet supportive care needs.

Abstract

Despite high levels of psychological distress, there is a scarcity of research on unmet supportive care needs in haematological cancer patients. This qualitative study used an in-depth interpretative phenomenological approach to investigate the needs reported by six Non-Hodgkin lymphoma patients and explored how these needs consequently shaped the patient experience. Emergent themes included: concerns for family, information needs and the need for psychological support. Participants reported feeling different to other cancer patients. Lack of understanding of their diagnosis by friends and family, and access to relevant support services, are notable unmet needs that differ from previous findings.