• Epidermolysis bullosa: how social support affects quality of life

      Butterworth, Sondra; Mitchell, Andrew E. P.; Mason-Whitehead, Elizabeth; Martin, Kate; University of Chester (EMAP, 2019-05-01)
      Measuring quality of life has become an increasingly important method of evaluating the effect of health and social care interventions. The rare genetic condition epidermolysis bullosa is known to have a deep social impact on people’s quality of life, but most research into the condition is focused on its biomedical aspects and attempts to find a cure. A literature review has explored the relationship between social support and quality of life in people with epidermolysis bullosa. It concludes that, while more research is needed, social support does have a positive impact on quality of life and that professionals should adopt a bio-psychosocial approach to management.