• Assistive Technologies and the Carers of People with Dementia

      Bhattacharyya, Sarmishtha; Benbow, Susan M. (IGI Global, 2016-01)
      Assistive technologies have a role in supporting both formal and informal carers of people with dementia, and in maintaining the independence, and quality of life of both people with dementia and their carers. The authors report a narrative review of the use of technological interventions to empower the carers of people with dementia, and relate this to a model of ageing well. They argue that this highlights the importance of empowering and connecting with carers in order to increase their participation and connection in the care of their relative/client; and conclude that both empowerment and connection contribute to maintaining autonomy and well-being of both carers and people with dementia. Technological interventions should not be used as alternatives to connection. The emphasis in practice should be on empowering and connecting with both carers and people with dementia.
    • Late life acquired dual-sensory impairment: A systematic review of its impact on everyday competence

      Tiwana, Rumandeep; Benbow, Susan M.; Kingston, Paul; University of Chester (SAGE, 2016-09-29)
      The literature on the relationship between late acquired dual-sensory impairment (DSI) in older adults and the ability to remain independent is limited. A systematic search of the literature was conducted to assess the impact that late life acquired DSI in older adults has on their ability to remain independent within their homes. Exclusion and inclusion criteria were applied to the papers identified and eight qualified for inclusion in the review. Each selected paper was assessed using a quality rating scale. Country of origin, population studied, age, vision, and hearing criteria all varied between papers. They provide evidence that DSI affects everyday competence, and this effect is complicated by physical comorbidities, mental health, and social factors
    • Mobile app: Living and dying well with dementia

      Bhattacharyya, Sarmishtha; Benbow, Susan M.; Collins, Eve; University of Chester (Wiley, 2017-08-31)
      Digital technology is gaining wider use in healthcare. Here the authors consider whether a mobile application (app) they have developed could help promote understanding of dementia, its impact on those affected and to focus formal and family carers on key issues in end of life care.
    • Older adults and violence: An analysis of domestic homicide reviews in England involving adults over 60 years of age

      Benbow, Susan M.; Bhattacharyya, Sarmishtha; Kingston, Paul; University of Chester; Older Mind Matters; Betsi Cadwaladr University Health Board (Cambridge University Press, 2018-01-11)
      Domestic Homicide Reviews (DHRs) are conducted when an individual aged 16 or over appears to have died from violence, abuse or neglect by a person to whom they are related or with whom they are in an intimate relationship or who is a member of the same household. DHRs aim to identify lessons to be learned, to improve service responses to domestic abuse, and to contribute to prevention of domestic abuse/ homicide. We submitted freedom of information requests to English Local Authorities to identify DHRs where victim, perpetrator, or both were aged over 60. Collected Reports and/ or Executive Summaries were thematically analysed. Analysis identified four key themes in the context of the key relationship and caring: major mental illness of the perpetrator; drug and/or alcohol abuse; financial issues; and a history of domestic abuse in key or family relationships. We analysed 14 adult family homicides, 16 intimate partner homicides, and five homicide-suicides. Age per se did not emerge as a significant factor in our analysis. Terminology needs to be standardised, and training/ education regarding risk assessment improved in relation to age, myths around ageing/ dementia, and stresses of caring. Management of mental illness is a key factor. A central repository of DHR Reports accessible for research and subject to regular review would contribute to maximising learning and improving practice.
    • Spontaneous concerns about risk and abuse reported by people with dementia and their carers

      Benbow, Susan M.; Kingston, Paul; University of Chester (Emerald, 2017-04-10)
      Purpose To look at concerns about risk/ abuse expressed spontaneously by people with dementia (PwD) and their carers in narratives describing their journeys with dementia. Method Thirty-five narratives were elicited from PwD, carers of PwD and couples where one partner was living with dementia as part of a study on the impact of producing narratives on PwD and their carers. Participants were found to allude to risk/ abuse, or specifically mention thoughts on risk and abuse in their narratives. A secondary analysis of the theme of risk/ abuse is reported here. Findings Concerns about risk/ exploitation were often expressed in the narratives, and covered a range of areas including driving; safety in the home; safety outdoors; falls; finances; risk to PwD from others; risk to others from PwD; potential or actual police incidents; and neglect. Research limitations The narratives were elicited as part of another project and participants were not asked directly about risk: themes reported here were brought up spontaneously by participants. Practical implications In relation to dementia a wide range of risk/ abuse issues is of concern to PwD and their carers, including driving and financial vulnerabilities. PwD and carers are prepared to talk about risk/ abuse when given an opportunity. It is important to investigate and understand experiences and concerns about risk/ abuse if they are to be addressed in health and social care practice. Originality The narratives offer unique insights into the concerns of PwD and family carers.
    • Talking about my experiences ... at times disturbing yet positive': Producing narratives with people living with dementia

      Benbow, Susan M.; Kingston, Paul; University of Chester (SAGE, 2014-09-22)
      Background: This research investigated narrative production and use with families living with dementia. We hypothesised that the process of narrative production would be beneficial to people with dementia and carers, and would elicit important learning for health and social care professionals. Method: Through third sector partners, we recruited community-dwelling people with dementia and carers who consented to develop written, audiotaped or videotaped narratives. Audio-taped narratives were transcribed verbatim and handwritten narratives word-processed. After checking by participants, completed narratives were analysed thematically using qualitative data analysis computer software. A summary of the analysis was circulated to participants, inviting feedback: the analysis was then reviewed. A feedback questionnaire was subsequently circulated to participants, and responses were analysed thematically. Results: Twenty-one carers and 20 people with dementia participated in the project. Four themes of support were identified: ‘relationships’, ‘services’, ‘prior experience of coping’ and having an ‘explanation for the dementia’. Three themes were identified as possible additional stresses: ‘emotions’, ‘physical health’ and ‘identity’. We suggest a model incorporating all these themes, which appeared to contribute to three further themes; ‘experience of dementia’, ‘approaches to coping’ and ‘looking to the future’. In participant feedback, the main themes identified were ‘emotions’, ‘putting things in perspective’, ‘sharing or not sharing the narrative’ and ‘actions resulting’. Conclusions: Producing a narrative is a valuable and engaging experience for people with dementia and carers, and is likely to contribute to the quality of dementia care.Further research is needed to establish how narrative production could be incorporated into routine practice.
    • What’s in a name? Family violence involving older adults

      Benbow, Susan M.; Bhattacharyya, Sharmi; Kingston, Paul (Emerald, 2018-12-10)