• Co-production of post-diagnostic psychosocial interventions with carers of people with intellectual disability and dementia

      Acton, Daniel; Duncan, Caroline; Jaydeokar, Sujeet; Cheshire and Wirral Partnership NHS Foundation Trust; University of Chester (Emerald, 2022-04-21)
      This paper aims to underline the importance of using a collaborative approach when designing and adapting a post diagnostic psychosocial intervention of cognitive stimulation therapy (CST) for people with intellectual disability and dementia. As part of a service improvement, a manual of CST was adapted, for delivery in clinical practice. A qualitative co-production method allowed participants with a lived experience to provide regular feedback relating to the development of the adapted CST manual and intervention programme. This feedback was used to make continual development changes to the CST manual. The study demonstrated co-production with those who provide care is valuable in adapting psychosocial therapies for people with an intellectual disability and dementia. Additional findings identified the need for carer education in ageing, dementia care, and the physical health needs for older people with intellectual disability. This is the first study that has used a co-production approach with families and carers in adapting a group therapy programme for people with an intellectual disability. This paper underlines the need for post diagnostic clinical interventions for people with dementia and those who provide care.
    • Intellectual disability and autism in adults influence psychological treatments for mental health conditions

      Mills, Rachel; Soper, Paul; Michelet, Felix; Stewart, Alex; Jaydeokar, Sujeet; University of Chester
      Mental health conditions are often underdiagnosed in adults with intellectual disability and do not always receive psychological interventions as recommended by the National Institute for Health and Care Excellent guidelines. To realise the national UK programme’s aim of stopping overuse of medications in people with intellectual disability, it is important that these individuals have access to appropriate non-pharmacological interventions. We examined the relationship between an individual’s level of intellectual disability and presence or absence of autism with access to relevant non-pharmacological interventions from specialist community intellectual disability services. A cross-sectional study of adults accessing four specialist intellectual disability services in North West England in 2019. There was high prevalence of mental health co-morbidity, even higher for autistic adults. However, a relatively small percentage of the study population were receiving psychological interventions. The most frequent non-pharmacological intervention was positive behaviour support plan, irrespective of comorbid mental illnesses. Not having access to psychological interventions for the treatment of mental illness could result in poor health outcomes and increasing health inequalities. The study highlights the need for developing psychological interventions particularly for those with moderate to severe intellectual disability and for those with associated autism. This large sample study examined the relationship between intellectual disability level and presence of autism with accessing psychological interventions.