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dc.contributor.authorFlynn, Samantha*
dc.contributor.authorHulbert-Williams, Nicholas J.*
dc.contributor.authorHulbert-Williams, Lee*
dc.contributor.authorBramwell, Ros*
dc.date.accessioned2015-01-12T09:54:47Zen
dc.date.available2015-01-12T09:54:47Zen
dc.date.issued2015en
dc.identifier.citationJournal of Intellectual Disabilities, 2015, 19(2), pp. 178-194en
dc.identifier.issn1744-6295en
dc.identifier.doi10.1177/1744629514565680en
dc.identifier.urihttp://hdl.handle.net/10034/338112en
dc.descriptionThis is an author-produced version of an article accepted for publication in the Journal of Intellectual Disabilities and appeared online on 7/1/2015© 2015en
dc.description.abstractBackground: Increased life expectancy has led to an increase in diagnoses of chronic illness in people with an intellectual disability; despite this increase, research about the psychological impact is rare. This review explored the psychosocial experiences of chronic illness in adults with an intellectual disability, revealing potential predictors and moderators of these experiences. Methods: Online databases were systematically searched to identify relevant literature, using predefined inclusion criteria. Of the 25,058 titles initially identified, 4 were included, that is, those collecting data on people with an intellectual disability and diagnosed with cancer (n = 2), chronic pain (n = 1) and diabetes (n = 1). Results: Narrative synthesis of the data identified six themes, namely, delayed diagnosis, information, communication and understanding, negative psychological consequences, negative physical consequences, social perception and social support. Conclusions: There are unmet needs within this population, including a lack of assistance in understanding their illness. A substantial gap in the literature should be addressed through further empirical work.
dc.language.isoenen
dc.publisherSAGEen
dc.relation.urlhttp://jid.sagepub.com/en
dc.relation.urlhttp://jid.sagepub.com/cgi/doi/10.1177/1744629514565680en
dc.rightsArchived with thanks to Journal of Intellectual Disabilitiesen
dc.subjectchronic illnessen
dc.subjectintellectual disabilityen
dc.subjectpsychosocial needsen
dc.subjectsystematic reviewen
dc.titlePsychosocial experiences of chronic illness in individuals with an intellectual disability: A systematic review of the literatureen
dc.typeArticleen
dc.identifier.eissn1744-6309en
dc.contributor.departmentUniversity of Chesteren
dc.identifier.journalJournal of Intellectual Disabilitiesen
refterms.dateFOA2018-08-13T12:24:35Z
html.description.abstractBackground: Increased life expectancy has led to an increase in diagnoses of chronic illness in people with an intellectual disability; despite this increase, research about the psychological impact is rare. This review explored the psychosocial experiences of chronic illness in adults with an intellectual disability, revealing potential predictors and moderators of these experiences. Methods: Online databases were systematically searched to identify relevant literature, using predefined inclusion criteria. Of the 25,058 titles initially identified, 4 were included, that is, those collecting data on people with an intellectual disability and diagnosed with cancer (n = 2), chronic pain (n = 1) and diabetes (n = 1). Results: Narrative synthesis of the data identified six themes, namely, delayed diagnosis, information, communication and understanding, negative psychological consequences, negative physical consequences, social perception and social support. Conclusions: There are unmet needs within this population, including a lack of assistance in understanding their illness. A substantial gap in the literature should be addressed through further empirical work.


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