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dc.contributor.authorLovell, Andy*
dc.contributor.authorMason, Tom*
dc.date.accessioned2012-02-17T12:37:11Z
dc.date.available2012-02-17T12:37:11Z
dc.date.issued2011-08-01
dc.identifier.citationScandinavian Journal of Disability Research, 2011
dc.identifier.issn1501-7419
dc.identifier.issn1745-3011
dc.identifier.doi10.1080/15017419.2010.540827
dc.identifier.urihttp://hdl.handle.net/10034/211209
dc.descriptionThis is the authors' print-print version of an article published in Scandianavian journal of disability research which is available online at: http://www.tandfonline.com/doi/abs/10.1080/15017419.2010.540827
dc.description.abstractCaring over time for a child/young adult with a learning disability requires that the family, and in particular the mother, negotiate their needs with services and professionals, and these negotiations are complicated further by significant behavioural issues in the children. This study reports on a series of interviews undertaken with mothers of children and young adults with learning disabilities and a history of challenging behaviours. The interviews were supplemented by documentary data from clinical and other notes in order to provide a more detailed view of the issues arising from caring over time. Detailed thematic analysis revealed five key themes demonstrating the cumulative effect of caring for someone with such complex needs, the centrality of that individual’s needs to the lives of those interviewed and the ongoing negotiation between family and professionals required in order for the former to work out how to continue caring both effectively and on their own terms. All the names of mothers and children are psuedonyms.
dc.language.isoenen
dc.publisherTaylor & Francisen
dc.relation.urlhttp://www.tandf.co.uk/journals/titles/15017419.aspen
dc.subjectlearning disabilityen
dc.subjectfamilyen
dc.subjectnegotiationen
dc.subjectprofessional involvementen
dc.subjectchallenging behaviouren
dc.titleCaring for a child with a learning disability born into the family unit: Women's recollections over timeen
dc.typeArticleen
dc.contributor.departmentUniversity of Chester
dc.identifier.journalScandinavian Journal of Disability Research
dc.date.accepted2010-09-23
html.description.abstractCaring over time for a child/young adult with a learning disability requires that the family, and in particular the mother, negotiate their needs with services and professionals, and these negotiations are complicated further by significant behavioural issues in the children. This study reports on a series of interviews undertaken with mothers of children and young adults with learning disabilities and a history of challenging behaviours. The interviews were supplemented by documentary data from clinical and other notes in order to provide a more detailed view of the issues arising from caring over time. Detailed thematic analysis revealed five key themes demonstrating the cumulative effect of caring for someone with such complex needs, the centrality of that individual’s needs to the lives of those interviewed and the ongoing negotiation between family and professionals required in order for the former to work out how to continue caring both effectively and on their own terms. All the names of mothers and children are psuedonyms.


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