Health and Social Care
http://hdl.handle.net/10034/6734
2024-03-28T19:19:54Z
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Designing an accessible and equitable conference and the evaluation of the barriers to research inclusion for rare disease communities
http://hdl.handle.net/10034/628543
Designing an accessible and equitable conference and the evaluation of the barriers to research inclusion for rare disease communities
Mitchell, Andrew E. P.; Butterworth, Sondra
Introduction: The United Kingdom Rare Diseases Framework, published in 2021, addresses the lack of diversity in rare disease research, particularly in clinical trials, due to intersecting issues related to rare disease symptoms and health inequalities. The framework outlines the government's commitment to improving the lives of the 3.5 million people living with rare conditions in the United Kingdom.
Objective: The primary objective is to advance equality, diversity, and inclusion in research by developing innovative methods to engage with communities, establish trust, and enhance the participation and voices of underrepresented and underserved communities.
Methods: The conference was held in May 2023, bringing together voices with lived experiences from rare and diverse communities to meet and discuss with established researchers, policy influencers and advocates. The evaluation design was developed using the Program Logic Model and utilised a conference evaluation form on barriers to inclusion.
Results: The Rare Disease Community identifies disability as the primary obstacle to inclusion. Social Care and Public Health Communities and Clinical Research Communities identified a need for more cultural competency. The Diverse Community selected psychosocial issues, and the Academic Community identified funding as the most significant barrier.
Conclusions: The Community of Practice workshops showed the variety of lived experiences and potential barriers people confront for inclusion in research. Listening to individual viewpoints was crucial to creating or repairing community trust. The Academic Community felt that research funders and ethics review boards must adapt their institutional practices to include financial resources for outreach and participation in research design.
© 2024 The Authors
2023-12-29T00:00:00Z
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‘One Is Too Many’ preventing self-harm and suicide in military veterans: a quantitative evaluation
http://hdl.handle.net/10034/628541
‘One Is Too Many’ preventing self-harm and suicide in military veterans: a quantitative evaluation
Finnegan, Alan; Salem, Kate; Ainsworth-Moore, Lottie
Introduction: In 2021, the Armed Forces Covenant Fund Trust allocated over £2 million to programmes designed to have a clear and demonstrable impact on suicide prevention. Four grant holders delivered a combination of psychotherapeutic interventions, group activities, social prescribing, peer support mentoring, life skills coaching, educational courses and practical help with housing and employment. The evaluation was completed between August 2021 and July 2023. Methods: A survey was completed by 503 participants at entry and 423 at exit. It captured data regarding demographic and military-specific details, health status, situational stressors, predisposing symptoms, help-seeking behaviour, social engagement, housing, living arrangements and employment status. The questionnaire included a number of validated psychometric questionnaires. Results: This evaluation revealed reductions in situational stressors, symptoms and mental health illnesses. Seventy-six per cent of participants had completed an Operational Tour, and 77% were exposed to a traumatic event during service. It was the negative impact of unresolved traumatic effects that influenced service-users to require support. Forty-nine per cent delayed seeking help, and 36% self-referred to the One Is Too Many programme which demonstrates the importance of this option. There were improvements in the participants’ social networking, social activities, club membership and having people to rely on. Only 4% of participants were women which reinforces the requirement to explore initiatives to engage with female veterans. Conclusions: Timely therapeutic and social prescribing interventions in a safe environment lowered depression, anxiety and the associated situational stressors leading to self-harming and may have reduced suicide. It presented another option to veterans and their families regarding where they can obtain support, care and therapeutic interventions. The programme provided a strong foundation for delivery organisations to forge lasting collaborative partnerships that can be extended to working with other authorities and institutes. The results highlight pathways for prevention and intervention strategies to inform policymakers, healthcare professionals and third-sector organisations.
2024-03-05T00:00:00Z
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Mental Health and Well-being amongst Healthcare Professionals in Clinical Training
http://hdl.handle.net/10034/628540
Mental Health and Well-being amongst Healthcare Professionals in Clinical Training
Mitchell, Andrew E. P.
Healthcare workers in clinical training are at a high risk of stress and burnout due to their dual clinical practice and academic components. The psychosocial clinical environment and personality traits contribute to healthcare workers' increased risk of psychological distress. The two-dimensional circumplex proposed by the complete state model of mental health suggests that people with mental illness symptoms can have mental well-being and are seen as traversing the circumplex from floundering to flourishing. Poverty is a significant predictor of mental illness, and COVID-19 has been linked to poorer mental health. The WHO's Global Mental Health Report identifies three paradigm-shifting strategies for enhancing mental health, including elevating those who are impacted and reshaping social and living conditions. The United Nation's action plan is to achieve sustainable health goals for 2030. The aim is to improve leadership and governance, responsive and integrated care, strategies for promotion and prevention, and the use of evidence and research to improve mental health.
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A creative health placement: challenging student nurses to learn creatively
http://hdl.handle.net/10034/628538
A creative health placement: challenging student nurses to learn creatively
Ridgway, Victoria; Henshaw, Russell; Davies, Cherelle; Faulkner, Gary; Marsh, Victoria; Stonley, Lou
There is a drive to promote population health as a preventative measure. The use of creative health has been advocated to relieve pressures on healthcare services, but this can only be achieved by greater awareness of and immersion in such practices. The creative health placement at the University of Chester responded to this need, offering 60 nursing students the experience of an arts-based practice learning placement and the chance to explore their personal wellbeing. Such learning presented a challenge for students, requiring them to reflect on their expectations of nursing placements and respond creatively to the healthcare issues facing our profession.
This document is the Accepted Manuscript version of a published work that appeared in final form in [Nursing Times]. To access the final edited and published work see https://www.nursingtimes.net/roles/nurse-educators/creative-health-challenging-student-nurses-to-learn-from-the-arts-11-03-2024/
2024-03-11T00:00:00Z