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Decision support tool for physical health (DST-PH): stratifying risks to reduce avoidable deaths in people with intellectual disability
Jaydeokar, Sujeet Odiyoor, Mahesh Bohen, Faye Motterhead, Trixie Acton, Daniel James
Jaydeokar, Sujeet
Odiyoor, Mahesh
Bohen, Faye
Motterhead, Trixie
Acton, Daniel James
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2024-04-30
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Abstract
Purpose: People with intellectual disability die prematurely and from avoidable causes. Innovative solutions and proactive strategies have been limited in addressing this disparity. This paper aims to detail the process of developing a risk stratification tool to identify those individuals who are higher risk of premature mortality.
Design/methodology/approach: This study used population health management principles to conceptualise a risk stratification tool for avoidable deaths in people with intellectual disability. A review of the literature examined the existing evidence of causes of death in people with intellectual disability. A qualitative methodology using focused groups of specialist clinicians was used to understand the factors that contributed towards avoidable deaths in people with intellectual disability. Delphi groups were used for consensus on the variables for inclusion in the risk stratification tool (Decision Support Tool for Physical Health). Findings: A pilot of the Decision Support Tool for Physical Health within specialist intellectual disability service demonstrated effective utility and acceptability in clinical practice. The tool has also demonstrated good face and construct validity. A further study is currently being completed to examine concurrent and predictive validity of the tool.
Originality/value: To the best of the authors’ knowledge, this is the only study that has used a systematic approach to designing a risk stratification tool for identifying premature mortality in people with intellectual disability. The Decision Support Tool for Physical Health in clinical practice aims to guide clinical responses and prioritise those identified as at higher risk of avoidable deaths.
Citation
Jaydeokar, S., Odiyoor, M., Bohen, F., Motterhead, T., & Acton, D. J. (2024). Decision support tool for physical health (DST-PH): Stratifying risks to reduce avoidable deaths in people with intellectual disability. Advances in Mental Health and Intellectual Disabilities, 18(2), 49–62. https://doi.org/10.1108/AMHID-07-2023-0025
Publisher
Emerald
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Advances in Mental Health and Intellectual Disabilities
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Article
Language
en
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©Sujeet Jaydeokar, Mahesh Odiyoor, Faye Bohen, Trixie Motterhead and Daniel James Acton. Published by Emerald Publishing Limited.
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ISSN
2044-1282
EISSN
2044-1290
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