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Development and usability testing of a web-based psychosocial intervention for women living with metastatic breast cancer: Finding My Way-Advanced
Beatty, Lisa Koczwara, Bogda Butow, Phyllis N. Turner, Jane Girgis, Afaf Schofield, Penelope Hulbert-Williams, Nicholas J. Kaambwa, Billingsley Kemp, Emma
Beatty, Lisa
Koczwara, Bogda
Butow, Phyllis N.
Turner, Jane
Girgis, Afaf
Schofield, Penelope
Hulbert-Williams, Nicholas J.
Kaambwa, Billingsley
Kemp, Emma
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2021-03-15
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Abstract
Purpose: Women living with metastatic breast cancer (MBC) face significant distress and unmet needs, yet few resources have been developed for this population. The current study aimed to develop and evaluate the usability of Finding My Way-Advanced (FMW-A), a web-based self-guided psychosocial program for women with MBC.
Methods: FMW-A was co-designed through (a) adapting an efficacious online program for people with curatively treated cancer, and (b) receiving iterative rounds of input and feedback from a multidisciplinary co-design team including consumers, clinicians and academics. A think-aloud protocol was then implemented to test the usability of the resulting 6-module prototype, with women living with MBC accessing up to three modules with an interviewer sitting along-side. Participants were recruited until saturation of themes occurred. Data were analysed thematically.
Results: Participants (n=8) were, on average, 65.3 years old, mostly partnered (n=5), retired (n=6), post-secondary school educated (n=6), with non-dependent children (n=7). Feedback fell into 6 themes. Positive feedback about FMW-A summarised the supportive and informative nature of the programme, supplemented by comments about broadly relatable content. However, one size clearly did not fit all: within themes, diverging experiences emerged regarding navigability, worksheets and layout. Participants noted that having/making time for the intervention would be important to program engagement.
Conclusions: Usability testing indicated participants found content helpful and relatable, and identified significant pragmatic improvements to be made prior to further testing.
Implications for cancer survivors: The development of FMW-A represents an important step in providing acceptable resources to support women living with MBC.
Citation
Beatty, L., Koczwara, B., Butow, P., Turner, J., Girgis, A., Schofield, P., Hulbert-Williams, N. J., Kaambwa, B., & Kemp, E. (2021). Development and usability testing of a web-based psychosocial intervention for women living with metastatic breast cancer: Finding My Way-Advanced. Journal of Cancer Survivorship, 15(3), 403–409. https://doi.org/10.1007/s11764-021-01019-5
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Springer
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Journal of Cancer Survivorship
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Article
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The final publication is available at Springer via http://dx.doi.org/10.1007/s11764-021-01019-5
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ISSN
1932-2259
EISSN
1932-2267