Talking about my experiences ... at times disturbing yet positive': Producing narratives with people living with dementia

Hdl Handle:
http://hdl.handle.net/10034/620480
Title:
Talking about my experiences ... at times disturbing yet positive': Producing narratives with people living with dementia
Authors:
Benbow, Susan M,; Kingston, Paul
Abstract:
Background: This research investigated narrative production and use with families living with dementia. We hypothesised that the process of narrative production would be beneficial to people with dementia and carers, and would elicit important learning for health and social care professionals. Method: Through third sector partners, we recruited community-dwelling people with dementia and carers who consented to develop written, audiotaped or videotaped narratives. Audio-taped narratives were transcribed verbatim and handwritten narratives word-processed. After checking by participants, completed narratives were analysed thematically using qualitative data analysis computer software. A summary of the analysis was circulated to participants, inviting feedback: the analysis was then reviewed. A feedback questionnaire was subsequently circulated to participants, and responses were analysed thematically. Results: Twenty-one carers and 20 people with dementia participated in the project. Four themes of support were identified: ‘relationships’, ‘services’, ‘prior experience of coping’ and having an ‘explanation for the dementia’. Three themes were identified as possible additional stresses: ‘emotions’, ‘physical health’ and ‘identity’. We suggest a model incorporating all these themes, which appeared to contribute to three further themes; ‘experience of dementia’, ‘approaches to coping’ and ‘looking to the future’. In participant feedback, the main themes identified were ‘emotions’, ‘putting things in perspective’, ‘sharing or not sharing the narrative’ and ‘actions resulting’. Conclusions: Producing a narrative is a valuable and engaging experience for people with dementia and carers, and is likely to contribute to the quality of dementia care.Further research is needed to establish how narrative production could be incorporated into routine practice.
Affiliation:
University of Chester
Citation:
Benbow, S. M., & Kingston, P. (2016). 'Talking about my experiences ... at times disturbing yet positive': producing narratives with people living with dementia Dementia, 15(5), 1034-1052. DOI: 10.1177/1471301214551845
Publisher:
SAGE
Journal:
Dementia
Publication Date:
22-Sep-2014
URI:
http://hdl.handle.net/10034/620480
DOI:
10.1177/1471301214551845
Additional Links:
http://journals.sagepub.com/doi/abs/10.1177/1471301214551845
Type:
Article
Language:
en
EISSN:
1741-2684
Appears in Collections:
Health and Social Care

Full metadata record

DC FieldValue Language
dc.contributor.authorBenbow, Susan M,en
dc.contributor.authorKingston, Paulen
dc.date.accessioned2017-04-25T10:26:24Z-
dc.date.available2017-04-25T10:26:24Z-
dc.date.issued2014-09-22-
dc.identifier.citationBenbow, S. M., & Kingston, P. (2016). 'Talking about my experiences ... at times disturbing yet positive': producing narratives with people living with dementia Dementia, 15(5), 1034-1052. DOI: 10.1177/1471301214551845en
dc.identifier.doi10.1177/1471301214551845-
dc.identifier.urihttp://hdl.handle.net/10034/620480-
dc.description.abstractBackground: This research investigated narrative production and use with families living with dementia. We hypothesised that the process of narrative production would be beneficial to people with dementia and carers, and would elicit important learning for health and social care professionals. Method: Through third sector partners, we recruited community-dwelling people with dementia and carers who consented to develop written, audiotaped or videotaped narratives. Audio-taped narratives were transcribed verbatim and handwritten narratives word-processed. After checking by participants, completed narratives were analysed thematically using qualitative data analysis computer software. A summary of the analysis was circulated to participants, inviting feedback: the analysis was then reviewed. A feedback questionnaire was subsequently circulated to participants, and responses were analysed thematically. Results: Twenty-one carers and 20 people with dementia participated in the project. Four themes of support were identified: ‘relationships’, ‘services’, ‘prior experience of coping’ and having an ‘explanation for the dementia’. Three themes were identified as possible additional stresses: ‘emotions’, ‘physical health’ and ‘identity’. We suggest a model incorporating all these themes, which appeared to contribute to three further themes; ‘experience of dementia’, ‘approaches to coping’ and ‘looking to the future’. In participant feedback, the main themes identified were ‘emotions’, ‘putting things in perspective’, ‘sharing or not sharing the narrative’ and ‘actions resulting’. Conclusions: Producing a narrative is a valuable and engaging experience for people with dementia and carers, and is likely to contribute to the quality of dementia care.Further research is needed to establish how narrative production could be incorporated into routine practice.en
dc.language.isoenen
dc.publisherSAGEen
dc.relation.urlhttp://journals.sagepub.com/doi/abs/10.1177/1471301214551845en
dc.rightsAn error occurred on the license name.*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en
dc.subjectCareren
dc.subjectDementiaen
dc.subjectLiving with dementiaen
dc.subjectNarrativesen
dc.subjectRelationshipsen
dc.titleTalking about my experiences ... at times disturbing yet positive': Producing narratives with people living with dementiaen
dc.typeArticleen
dc.identifier.eissn1741-2684-
dc.contributor.departmentUniversity of Chesteren
dc.identifier.journalDementiaen
dc.date.accepted2014-08-20-
or.grant.openaccessYesen
rioxxterms.funderBritish Medical Association Dawkins Strutt grant 2009en
rioxxterms.identifier.projectTransferred from Staffordshire Universityen
rioxxterms.versionAMen
rioxxterms.licenseref.startdate2014-09-22-
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