Caring for cancer patients with an intellectual disability: Attitudes and care perceptions of UK oncology nurses

Hdl Handle:
http://hdl.handle.net/10034/550848
Title:
Caring for cancer patients with an intellectual disability: Attitudes and care perceptions of UK oncology nurses
Authors:
Flynn, Samantha; Hulbert-Williams, Lee; Bramwell, Ros ( 0000-0003-0392-8579 ) ; Stevens-Gill, Debbie; Hulbert-Williams, Nicholas J.
Abstract:
Background: Caring for people with cancer or an intellectual disability (ID) is stressful: little is known about the combined impact of caring for cancer patients with an ID, though this is expected to be especially challenging. Method: Eighty-three nurses, working in oncology or a related field (i.e. palliative care) were recruited. Perceptions of caring for patients with and without an ID were measured, alongside potentially confounding information about participant demographic characteristics and perceived stress. Results: Participants felt less comfortable communicating with patients with an ID about their illness (F(1,82) = 59.52, p <0.001), more reliant on a caregiver for communication (F(1,82) = 26.29, p < 0.001), and less confident that the patient's needs would be identified (F(1,82) = 42.03, p < 0.001) and met (F(1,81) = 62.90, p < 0.001). Participants also believed that caring for this patient group would induce more stress, compared with patients without an ID (F(1,81) = 31.592, p < 0.001). Previous experience working with ID patient groups appears to mitigate some perceptions about providing care to this population. Conclusions: Caring for cancer patients with an ID may intensify this, already difficult, role. Through training and knowledge exchange, oncology nurse's confidence in communication, providing appropriate care, and positivity towards this patient group may be improved.
Affiliation:
University of Chester and Institute of Psychology, Faculty of Education, Health and Wellbeing, University of Wolverhampton
Citation:
Flynn, S., Hulbert-Williams, L., Bramwell, R., Stevens-Gill, D., & Hulbert-Williams, N. (2015). Caring for cancer patients with an intellectual disability: Attitudes and care perceptions of UK oncology nurses. European Journal of Oncology Nursing, 19(5), 568-574. doi: http://dx.doi.org/10.1016/j.ejon.2015.03.002
Publisher:
Elsevier
Journal:
European Journal of Oncology Nursing
Publication Date:
2015
URI:
http://hdl.handle.net/10034/550848
DOI:
10.1016/j.ejon.2015.03.002
Additional Links:
http://www.journals.elsevier.com/european-journal-of-oncology-nursing/
Type:
Article
Language:
en
Description:
NOTICE: this is the author’s version of a work that was accepted for publication in European Journal of Oncology Nursing. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in European Journal of Oncology Nursing, vol. 19, issue 5 (2015) 10.1016/j.ejon.2015.03.002
ISSN:
1462-3889
EISSN:
1532-2122
Appears in Collections:
Psychology

Full metadata record

DC FieldValue Language
dc.contributor.authorFlynn, Samanthaen
dc.contributor.authorHulbert-Williams, Leeen
dc.contributor.authorBramwell, Rosen
dc.contributor.authorStevens-Gill, Debbieen
dc.contributor.authorHulbert-Williams, Nicholas J.en
dc.date.accessioned2015-04-28T13:25:52Zen
dc.date.available2015-04-28T13:25:52Zen
dc.date.issued2015en
dc.identifier.citationFlynn, S., Hulbert-Williams, L., Bramwell, R., Stevens-Gill, D., & Hulbert-Williams, N. (2015). Caring for cancer patients with an intellectual disability: Attitudes and care perceptions of UK oncology nurses. European Journal of Oncology Nursing, 19(5), 568-574. doi: http://dx.doi.org/10.1016/j.ejon.2015.03.002en
dc.identifier.issn1462-3889en
dc.identifier.doi10.1016/j.ejon.2015.03.002en
dc.identifier.urihttp://hdl.handle.net/10034/550848en
dc.descriptionNOTICE: this is the author’s version of a work that was accepted for publication in European Journal of Oncology Nursing. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in European Journal of Oncology Nursing, vol. 19, issue 5 (2015) 10.1016/j.ejon.2015.03.002en
dc.description.abstractBackground: Caring for people with cancer or an intellectual disability (ID) is stressful: little is known about the combined impact of caring for cancer patients with an ID, though this is expected to be especially challenging. Method: Eighty-three nurses, working in oncology or a related field (i.e. palliative care) were recruited. Perceptions of caring for patients with and without an ID were measured, alongside potentially confounding information about participant demographic characteristics and perceived stress. Results: Participants felt less comfortable communicating with patients with an ID about their illness (F(1,82) = 59.52, p <0.001), more reliant on a caregiver for communication (F(1,82) = 26.29, p < 0.001), and less confident that the patient's needs would be identified (F(1,82) = 42.03, p < 0.001) and met (F(1,81) = 62.90, p < 0.001). Participants also believed that caring for this patient group would induce more stress, compared with patients without an ID (F(1,81) = 31.592, p < 0.001). Previous experience working with ID patient groups appears to mitigate some perceptions about providing care to this population. Conclusions: Caring for cancer patients with an ID may intensify this, already difficult, role. Through training and knowledge exchange, oncology nurse's confidence in communication, providing appropriate care, and positivity towards this patient group may be improved.en
dc.language.isoenen
dc.publisherElsevieren
dc.relation.urlhttp://www.journals.elsevier.com/european-journal-of-oncology-nursing/en
dc.subjectoncology nursesen
dc.subjectintellectual disabilitiesen
dc.subjectcanceren
dc.subjectstressen
dc.subjectknowledgeen
dc.subjectcommunicationen
dc.titleCaring for cancer patients with an intellectual disability: Attitudes and care perceptions of UK oncology nursesen
dc.typeArticleen
dc.identifier.eissn1532-2122en
dc.contributor.departmentUniversity of Chester and Institute of Psychology, Faculty of Education, Health and Wellbeing, University of Wolverhamptonen
dc.identifier.journalEuropean Journal of Oncology Nursingen
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