Online information and support needs of women with advanced breast cancer: A qualitative analysis

Hdl Handle:
http://hdl.handle.net/10034/621097
Title:
Online information and support needs of women with advanced breast cancer: A qualitative analysis
Authors:
Kemp, Emma; Koczwara, Bogda; Butow, Phyllis N.; Turner, Jane; Girgis, Afaf; Schofield, Penelope; Hulbert-Williams, Nicholas J.; Levesque, Janelle V.; Spence, Danielle; Vatandoust, Sina; Kichenadasse, Ganessan; Roy, Amitesh; Sukumaran, Shawgi; Karapetis, Christos S.; Richards, Caroline; Fitzgerald, Michael; Beatty, Lisa
Abstract:
Purpose: Women with advanced breast cancer (ABC) face significant adjustment challenges, yet few resources provide them with information and support, and attendance barriers can preclude access to face to face psychosocial support. This paper reports on two qualitative studies examining (i) whether information and support-seeking preferences of women with ABC could be addressed in an online intervention, and (ii) how an existing intervention for patients with early stage cancer could be adapted for women with ABC. Methods: Women with ABC participated in telephone interviews about their information and support- seeking preferences (N = 21) and evaluated an online intervention focused on early-stage cancer (N = 15). Interviews were transcribed and underwent thematic analysis using the framework method to identify salient themes. Results: Participants most commonly sought medical, lifestyle-related, and practical information/support; however, when presented with an online intervention, participants most commonly gave positive feedback on content on coping with emotional distress. Difficulty finding information and barriers to using common sources of information/support including health professionals, family and friends, and peers were reported; however, some women also reported not wanting information or support. All participants evaluating the existing intervention gave positive feedback on various components, with results suggesting an online intervention could be an effective means of providing information/support to women with ABC, given improved specificity/relevance to ABC and increased tailoring to individuals circumstances and preferences. Conclusions: Adaptation of an existing online intervention for early stage cancer appears a promising avenue to address the information and support needs of women with ABC.
Affiliation:
Flinders University; Flinders Centre for Innovation in Cancer; University of Sydney; University of Queensland; University of New South Wales; Swinburne University of Technology; University of Chester; Breast Cancer Network Australia
Citation:
Kemp, E., et al. (2018). Online information and support needs of women with advanced breast cancer: A qualitative analysis. Supportive Care in Cancer.
Publisher:
Springer
Journal:
Supportive Care in Cancer
Publication Date:
24-Apr-2018
URI:
http://hdl.handle.net/10034/621097
DOI:
10.1007/s00520-018-4206-1
Additional Links:
https://link.springer.com/journal/520
Type:
Article
Language:
en
EISSN:
1433-7339
Appears in Collections:
Psychology

Full metadata record

DC FieldValue Language
dc.contributor.authorKemp, Emmaen
dc.contributor.authorKoczwara, Bogdaen
dc.contributor.authorButow, Phyllis N.en
dc.contributor.authorTurner, Janeen
dc.contributor.authorGirgis, Afafen
dc.contributor.authorSchofield, Penelopeen
dc.contributor.authorHulbert-Williams, Nicholas J.en
dc.contributor.authorLevesque, Janelle V.en
dc.contributor.authorSpence, Danielleen
dc.contributor.authorVatandoust, Sinaen
dc.contributor.authorKichenadasse, Ganessanen
dc.contributor.authorRoy, Amiteshen
dc.contributor.authorSukumaran, Shawgien
dc.contributor.authorKarapetis, Christos S.en
dc.contributor.authorRichards, Carolineen
dc.contributor.authorFitzgerald, Michaelen
dc.contributor.authorBeatty, Lisaen
dc.date.accessioned2018-04-23T10:37:49Z-
dc.date.available2018-04-23T10:37:49Z-
dc.date.issued2018-04-24-
dc.identifier.citationKemp, E., et al. (2018). Online information and support needs of women with advanced breast cancer: A qualitative analysis. Supportive Care in Cancer.en
dc.identifier.doi10.1007/s00520-018-4206-1-
dc.identifier.urihttp://hdl.handle.net/10034/621097-
dc.description.abstractPurpose: Women with advanced breast cancer (ABC) face significant adjustment challenges, yet few resources provide them with information and support, and attendance barriers can preclude access to face to face psychosocial support. This paper reports on two qualitative studies examining (i) whether information and support-seeking preferences of women with ABC could be addressed in an online intervention, and (ii) how an existing intervention for patients with early stage cancer could be adapted for women with ABC. Methods: Women with ABC participated in telephone interviews about their information and support- seeking preferences (N = 21) and evaluated an online intervention focused on early-stage cancer (N = 15). Interviews were transcribed and underwent thematic analysis using the framework method to identify salient themes. Results: Participants most commonly sought medical, lifestyle-related, and practical information/support; however, when presented with an online intervention, participants most commonly gave positive feedback on content on coping with emotional distress. Difficulty finding information and barriers to using common sources of information/support including health professionals, family and friends, and peers were reported; however, some women also reported not wanting information or support. All participants evaluating the existing intervention gave positive feedback on various components, with results suggesting an online intervention could be an effective means of providing information/support to women with ABC, given improved specificity/relevance to ABC and increased tailoring to individuals circumstances and preferences. Conclusions: Adaptation of an existing online intervention for early stage cancer appears a promising avenue to address the information and support needs of women with ABC.en
dc.language.isoenen
dc.publisherSpringer-
dc.relation.urlhttps://link.springer.com/journal/520en
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en
dc.subjectMetastaticen
dc.subjectBreast Canceren
dc.subjectUnmet needsen
dc.subjectWeb-based interventionen
dc.subjectQualitativeen
dc.titleOnline information and support needs of women with advanced breast cancer: A qualitative analysisen
dc.typeArticleen
dc.identifier.eissn1433-7339-
dc.contributor.departmentFlinders University; Flinders Centre for Innovation in Cancer; University of Sydney; University of Queensland; University of New South Wales; Swinburne University of Technology; University of Chester; Breast Cancer Network Australiaen
dc.identifier.journalSupportive Care in Canceren
dc.date.accepted2018-04-07-
or.grant.openaccessYesen
rioxxterms.funderFlinders Foundation, Australiaen
rioxxterms.identifier.projectNAen
rioxxterms.versionAMen
rioxxterms.licenseref.startdate2218-04-23-
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